We are facilitating a series of workshops round the country, helping AgeUK Experts by Experience (who go out with CQC inspectors to listen to the views of care home residents, service users, patients and their families) to develop and improve their practice. Suzy and I have been AgeUK Experts by Experience for many years.
With her father (and indeed her husband and children), Suzy cares for her mother who has younger onset dementia at home with deep sensitivity and understanding.
My mother lived with dementia for ten years, three of them spent at home with my father before she moved to a care home – an experience that changed my life, and took me from a career in creative media to developing products and services that promote better understanding, communication and connection with the person with dementia. (More here)
The need for understanding and services for couples still living together at home who find themselves in this predicament can hardly be overstated.
A pilot programme about couples who live with a spouse who has dementia has recently been completed by Damian Murphy for Innovations in Dementia.
The way dementia separates and confuses couples can be heartbreaking and with the rising numbers of people living with the disease, the need to find ways for us all to get along better is greater than ever.
Called Getting Along, the project is designed to develop and enrich people's understanding of the needs of each other. Damian developed simple techniques to help them get along better. This film touches on ways to do it.